Now Reading: MP High Court seeks extra Rs 1 crore for Indore girl’s SMA
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MP High Court seeks extra Rs 1 crore for Indore girl’s SMA
The Madhya Pradesh High Court has asked the Centre and state government to help arrange about Rs 1 crore more for the treatment of three-year-old Anika Sharma, who suffers from Spinal Muscular…
The Story in Brief
The Madhya Pradesh High Court has asked the Centre and state government to help arrange about Rs 1 crore more for the treatment of three-year-old Anika Sharma, who suffers from Spinal Muscular Atrophy (SMA) Type-2. The court noted that even with central assistance of Rs 50 lakh and nearly Rs 8 crore raised through crowdfunding, an additional Rs 1 crore is still required to start treatment.
The Indore bench directed the petitioner's lawyer to submit details from the organisations holding the crowdfunded amount and asked Novartis to provide the bill to AIIMS. The next hearing is August 18.
The Indian Opinion
The court's push to bridge the gap is welcome, but one case cannot set a pattern. Rare diseases like SMA need a standing fund, not emergency appeals to the bench. The central scheme covers only Rs 50 lakh, far below the actual cost. If every rare-disease family must run a crowdfunding campaign and then plead in court, the system has failed. Watch whether the government announces a policy for such exceptional cases before the next hearing.
Source: indiatoday.in
This story was synthesised by AI from the source linked above.
